Family Roles

A Good Life

  • This book, a future planning guide by Al Etmanski, includes information on wills and estate planning, supported decision-making, circle of support development, and alternatives to legal guardianship. It looks “beyond contemporary social and rehabilitation services and programs to support our family members.” The book is intended to be utilized by families, persons with a disability, and service providers for future planning.

Life Planning for Adults with Developmental Disabilities

  • This book is a comprehensive guide to resources that parents or other family members can use to support an adult child or other individual with developmental disabilities for whom they provide care. The author, Judith Greenbaum, begins by providing information on how to assess the quality of life of an adult with a disability. She also offers a number of suggestions for increasing quality of life. The book then focuses on long term planning. Worksheets are included to help families develop their specific plans. Bookstore index:

Parental Caregivers' Desires for Lifetime Assistance Planning for Future Supports for Their Children with Intellectual and Developmental Disabilities

  • This article examines the concerns surrounding future life planning for families with children who have disabilities. According to a recent survey, most parents feel that the current support services they were receiving were not sufficient in planning for their child’s future. Willing to pay, but without sufficient support options, these parents remain unsure of what the future holds for their children. In this article, researchers assess a new model of future planning called Lifetime Assistance, which helps individuals with disabilities improve their quality of life and plan for the future. This model provides important activities and promotes skills such as transportation, living independently and preparing a budget. Through various tests, researchers have found this method to be most successful for parents and children.

Self-Determination: Supporting Successful Transition

  • Studies have shown that individuals who are self-determined are more likely to be successful in the transition to adulthood and the workforce. Teaching young adults how to direct their own lives is key to promoting self-determination. This web site offers several different curricula to help students learn how to be self-determined. It also includes tips for parents on how to promote choice-making and self-advocacy from the childhood.

A parents' guide to the self-determined learning model for early elementary students

  • Susan B. Palmer and Michael L. Wehmeyer provide an introduction for parents of younger student to use a model of problem solving and goal setting with their children.