This online course, designed for health professionals, seeks to increase quality healthcare to persons with developmental disabilities. Training objectives include defining disabilities, identifying developmental disabilities and associated conditions, learning quality healthcare barriers, and developing skills to increase communication and enhance quality care for patients with developmental disabilities.
This online training program for health professionals promotes culturally sensitive, quality care to adults and children with physical and sensory disabilities. Course objectives include gaining understanding, recognizing the four barriers to quality health care, and learning at least five skills to enhance health care. Course ID is 1025624.
This Think College brief discusses the challenges facing transition-age youth with special healthcare needs. It provides strategies for parents and youth and encourages family discussions to prepare students for college.
This guide provides information and advice for young adults who want to be more in charge of their health care and stay healthy as they transition to adulthood. It prepares you to work effectively with healthcare providers and to understand your rights and responsibilities. The booklet also includes quizzes and additional online resources.
The Department of Health and Human Services protects the health of all Americans, especially those least able to help themselves. The HHS website provides information on recent news and laws affecting health care, funding and grants, additional sites for healthy living. Information is also available on ways to improve your health and the health of your family, assistance with daily living, vaccinations, and everything else needed to lead a healthy lifestyle.
AUCD’s Health Reform Hub provides information and guidance to help explain what the Patient Protection and Affordable Care Act means for individuals. The Hub lists recent health care news, along with the full text, summaries, and explanations of the law and recent regulations, many of which impact people with disabilities. It also provides links to additional resources and other sites related to health care.
“No Box to Tick” offers guidance to caregivers who wish to address the important emotional and spiritual needs of people with learning disabilities. It details examples of issues, such as “Losing people we love,” “Loneliness,” and “Celebrating Together,” and then lists simple steps caregivers can take to address these needs.
AbleLink Technologies, an innovator in cognitive support technology, partnered with The Westchester Institute for Human Development to create the self-directed learning iPad App, My Health, My Choice, My Responsibility. This app includes eight essential areas important to living a healthy lifestyle. Some topics include: Taking Charge of Your Health, Developing a Health Plan, Get Moving and Eating Right. This app can be purchased from Apple’s App Store for $49.99. The My Health, My Choice, My Responsibility initiative is aimed to encourage individuals with disabilities to advocate for their health and learn how to make good decisions that will improve their overall health.
This resource is designed to help pediatricians provide high-quality and patient-centered services. By strengthening their communication skills, pediatricians can better understand the patients they treat and ultimately increase the overall health of their patients. With the increasing diversity of our country, it is crucial for health care professionals to be open to those of different cultures and backgrounds. They must be able to adapt and adjust to these changes in the health care system.
This useful website informs young people about the healthcare systems and services. By understanding the system, youth can become more involved in their own health care decisions. This site offers tools and resources with information on laws and legislation regarding young people’s healthcare. Also included are information on school-based services and how to find a knowledgeable doctor. By using this site, youth will better understand their options and choices regarding healthcare and take their own health into their hands.
The Florida Center for Inclusive Communities created B-HIP to encourage individuals to learn how to lead healthier lives. Abuse, Neglect, & Exploitation: How to Protect Yourself examines why people with disabilities are especially at risk for abuse and neglect and many of these cases often go unreported. It also lists signs of abuse and what to look for with your loved ones or young children as well as steps to take once you or someone you know is being abused or neglected. Download the pamphlet for free at the link provided above.
The Florida Center for Inclusive Communities created B-HIP to encourage individuals to learn how to lead healthier lives. Sleep Matters: How to Help Your Kids Sleep explores problems kids experience with sleep and the importance sleep has in the development of children. It offers tips on how to help kids sleep such as keeping a consistent bedtime each night. Sleep is necessary for kids especially for learning and development in the classroom. Download the pamphlet for free at the link provided above.
The Florida Center for Inclusive Communities created B-HIP to encourage individuals to learn how to lead healthier lives. Nutrition: The Food Pyramid and Living Healthy gives individuals tips on how to eat a healthy diet and the benefits of eating well. It also examines the importance of the food pyramid and offers examples of how to include more grains, vegetables and fruits in your diet. Download the pamphlet for free at the link provided above.
The Florida Center for Inclusive Communities created B-HIP to encourage individuals to learn how to lead healthier lives. Mouth Matters: Oral Health for People with Disabilities discusses the health benefits of having good oral hygiene. It also examines the risks associated with poor oral health such as tooth decay and gum disease. The fact sheet gives tips on how to improve oral hygiene such as flossing and visiting the dentist. Download the pamphlet for free at the link provided above.
The Florida Center for Inclusive Communities created B-HIP to encourage individuals to learn how to lead healthier lives. Physical Activity: Getting Fit for Life offers individuals facts on physical fitness as well as examples of aerobic, muscle-strengthening and bone-strengthening activities. It emphasizes the importance of exercising to keep your heart healthy, have more energy and keep your bones strong. Download the pamphlet for free at the link provided above.
Self-Determination Theory in the Clinic: Motivating Physical & Mental Health. Sheldon, K., Williams, G., & Joiner, T. (2003).
This valuable book explains the history and the implications of the self-determination theory and provides clinical examples to show that it can be used to encourage patients undergoing treatment for physical or psychological issues.
The Centers for Disease Control website's segments of Healthy Living has several sections devoted to Leading a Long and Healthy Life and Getting the Best Possible Medical Care.
Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disablities
Marks, B., Sisirak, J., & Heller, T.
The benefits of a health and nutrition program are endless, especially for people with disabilities. This revolutionary curriculum will help adults with disabilities build healthy lifestyles by providing better nutrition, exercise, and health choices. The research-based, field-tested program provides activities for adults with a broad range of disabilities. This curriculum assists individuals in creating a well-balanced diet, improving self-esteem, developing exercise goals and much more. It contains step-by-step instructions for professionals on running the program safely and effectively as well as worksheets and weekly newsletters for participants.
Order directly from Brookes Publishing Co. or 1-800-638-3775
Cost Per Unit: $64.95 (Paperback with CD-ROM)
The purpose of this guide is to teach young adults with disabilities how to become strong self-advocates for their own health and health care. The guide includes activities, worksheets, and tips for communicating effectively with health care providers, keeping track of personal health information, and figuring out what supports will help each individual make the health-related choices that are right for him or her. It is available in English and Spanish. Book copy can be ordered.
FCIC's My Health Passport is a document that should be completed by an individual (and/or their caregiver), to describe important aspects about their special health care needs. My Health Passport was designed to be shared with many types of healthcare providers, in clinic and hospital settings. It is especially useful for providing pertinent information to those who are not very familiar in providing care to individuals with intellectual/developmental disabilities. A limited quantity of My Health Passports are currently available, and can be ordered by contacting Dr. Liz Perkins at firstname.lastname@example.org or Tel: 813 974 7076.
Preservice Health Training Project
The Preservice Health Training Project was developed out of a need to train healthcare workers to be responsive to the needs of persons with developmental disabilities. Each Website is designed to impart substantive knowledge to medical providers regarding developmental disabilities and to familiarize them with interacting with such individuals in a clinical setting. All PHT tutorials are based on multi-media, interactive, virtual patient presentations and are evidence-based. All include built-in assessment tools.